Holidaying with Dementia 10 Steps Booklet

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Dr. Carol Sargent

Contents

Step 2. Identify Your Worries

Step 1. Why Do You Want a Holiday

Step 3. Consider Your Transport

Step 5. Pick Your Activites

Step 7. Choose Your Accomodation

Step 10. Create Your Emergency Plan

Step 9. Create Your Detailed Itinerary

Step 8. Select Your Destinatio n

Step 4. Length of Your Holiday

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36 Resources

Get Ready to Go

Step 6. What Support Do You Need

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Step 1.

Why Do You Want a Holiday?

It’s a question we sometimes forget to ask

ourselves, whether we’re living with dementia or

not, but getting to the heart of the answer to this

will really help with much of your decision-making.

What do you enjoy doing at home and what would

you rather not be doing while you’re away? Making

a list of the things you don’t want to do, as well as

a list of the things you do, is a first step.

Are there any new experiences you’d like to try

together or alone? Would you like to meet new

people? Are there any activities or new hobbies

you’d like to explore?

Once you’ve considered these questions, the

kinds of destinations and holidays most suited to

you will start to make themselves clear.

Would you prefer to be around other people with

dementia?

If you‘re looking for holiday ideas, you can find

links to a variety of dementia-inclusive holiday

options on the Sargent Group Consulting website:

https://sargentgroup.consulting/useful-links

Top Tip!

Step 2.

Identify Your Worries

Sitting down before you go away and spending a

bit of time considering any challenges you might

face on your break is a great way to really be

prepared and reduce worries and concerns.

Make a list of any potential challenges you may

need to overcome, tricky situations you might

face, and things you need to allow for when you’re

away from home.

Run this list past friends and family, as well as

dementia experts you are in contact with so that,

together, you can come up with possible

solutions. You can then pick the solutions you are

most comfortable with

While this exercise might raise a few issues most

of us would prefer not to think about before

going on holiday, knowing you have prepared for

all eventualities will relieve your anxiety and help

you to relax, allowing you to holiday with greater

confidence.

Join Dementia Travel and Tourism

Facebook Group

This private and compassionate group is a warm

and welcoming place where you can chat to your

peers about travel, get recommendations, ask

others about challenges you may have in

common, and share your own handy hints and

tips about places you've visited and how to get

the most out of time away.

Book Your Free 30 minute Dementia

Holiday Advice Meeting

With lived-in and professional experience of

holidaying with dementia Sargent Group

Consulting can provide you with a range of

personalised solutions to any barriers and

worries. This session will assess if going on

holiday is right for you or answer questions.

www.sargentgroup.consulting/dementia-

travel-advice.

Top Tips!

Step 3.

Consider Your Transport

Your mode of transport can make a big difference

to your overall holiday experience. Discuss which

travel option is most relaxing and enjoyable.

Ask yourself how long you are comfortable

travelling and the amount of time you can manage

doing so. This will help you when it comes to

narrowing down your destinations.

Consider starting with a short travel distance

using a familiar and comfortable transport

method. It can be worth thinking about a different

mode of transport to the holiday. For example, if

trains are a favourite, a holiday which starts with a

a train journey, taking in particularly impressive

scenery could be worth considering.

If you find busy train stations stressful, consider

catching a train at a smaller station instead. For

example, rather than going through London,

travel by car to Peterborough or Luton and catch

the train there.

Top Tip!

In the UK we don’t necessarily consider air travel

for the dementia community but, in larger

countries such as the US, there’s lots of expertise

and knowledge that makes air travel across time

zones manageable.

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In some cases, whether or not air travel feels

manageable is less about the flight itself and

more about the additional support required at the

airports either end of the journey.

Don’t underestimate how tiring travelling is. I

encourage people to arrange special assistance

to make travel more enjoyable. You can find a

range of useful transport links on our website

www.sargentgroup.consulting/useful-links.

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Think as well about what is most realistic in

terms of how long you want to be away. You’re

aiming for a reasonable balance that is long

enough to make it enjoyable and relaxing, whilst

also minimising the pressure on you both.

Step 4.

Length of Your Holiday?

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We would recommend the shortest trip should be

4 nights as, from our experience, breaks shorter

than this generally don‘t give sufficient time for

those involved to settle into their new

environment so they can relax and enjoy

themselves.

Top Tip!

If you are planning a long journey of more than

three hours, build in time to acclimatise to your

new destination. Consider a couple of days at an

airport hotel after a long haul flight to recover

and adjust to any time differences before

starting your holiday.

Step 5.

Pick Your Activities

It’s great to try new things. It can be fun. We all

know the kind of regular novel stimulation we get

from learning a new skill or completing a puzzle

can help our mental agility.

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In our experience, striking a balance between new

and familiar activities is the best approach.

However, it’s also sensible to engage in familiar

activities, especially when you’re away from home

and staying in an unfamiliar environment.

In corporating activities that are part of your usual

routine at home can be helpful. For example, if it’s

part of your daily schedule to go for a walk every

lunchtime or to always watch a p articular TV

programme, continue with that while you’re away.

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The surrou ndings may be different but

maintaining even these small elements of familiar

routine can help with feelings of security and

being able to stay in the moment.

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Consider downloading the Snowball App which can

give you directions to disabled toilets as well as

reviews of places that are dementia inclusive and

wheelchair accessible.

You could also see if there is DEEP group close to

where you’re visiting and contact them to get

advice on dementia-inclusive places in their local

area.

If you want to find new activities, we suggest

having a look at the ones in Euan‘s Guide and the

Snowball, which have been reviewed by people

with lived-in experience of dementia.

Top Tip!

Step 6.

What Support Do You Need

Support can come in various ways, equipment,

technology, travel companion, care companion or

a personal care provider.

Think carefully about what support you will need.

If personal care is provided at home then you

should arrange to transfer your package of care.

Ask you current care provider if they can support

you or get in touch with Sargent Group Consulting

so we can introduce you to our trusted network.

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If you need specific

equipment then

make a list of what

is required and find

out if this can be

provided by your

property or if it can

be delivered by a

local company.

If you are worried about the transport to your

holiday then you might consider a travel

companion to accompany you or ask a family

member or friend to provide the transport.

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If you are daunted by going away yourself it may

be useful to arrange a holiday with a group of

peers living with dementia or family and friends.

They can provide you with some extra support and

reassurance if you need it.

Lastly you might want to consider downloading

and using some apps to support you getting

around your new destination, like Google Maps,

Uber or Snowball.

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Since the pandemic, a greater range of

delivery food services have arisen, often

providing healthier and even gourmet

options, so it’s worth exploring the local

options as part of your preparations.

Remember, supermarkets will also deliver

your regular shopping to your holiday cottage

so, even if you prefer to stick to cooking your

favourite dishes, there’s no need to take your

grocery shopping with you.

If incontinence is an issue for either of you,

arrange to have adequate supplies delivered

to your accommodation in advance or on the

day of your arrival. This means you won’t have

to travel with bulky pads, leaving your

luggage free to transport other essentials.

Top Tips!

Step 7.

Choose Your Accommodation

In choosing your accommodation, consider where

you and your loved one have enjoyed staying on

holidays over the years and what will be most

appropriate for your current day-to-day needs.

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Try and strike a balance between somewhere that

will provide you with what you need, without

introducing additional risks, like being

overwhelmed by too much stimulation in busy

places withs lots of people or large buildings.

Questions to ask yourself when thinking about

accommodation:

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Would you prefer to have meals at scheduled

times, chosen from a specific menu, such as

is the case in a hotel; or to have the kind of

flexibility around meal-times that a holiday

cottage provides?

What will you do on a rainy day?

What kinds of activities do you and your loved

want to be able to do your accommodation?

Are they made easier or more difficult by

particular kinds of accommodation?

What activities and facilities are nearby? Are

there attractions and local shops within

walking distance or would everything involve

a car journey?

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